That’s right, it’s time, once again, for World Parkinson’s Day. I’ve often wondered about the wild proliferation of ‘days’ such as this. I presume the trend stems from the 1919 adoption of 11.11 as Commonwealth Remembrance Day following the ‘war to end all wars’. This day has, of course, not only turned into remembrance minute, but has been joined in the calendar by more ‘days’ than I care to count Continue reading
Category Archives: living with parkinson’s
The Agonists and the Ecstasy
At this moment, my body and brain are shutting down. It’s 2.45pm. I need a nap. This is partially because I suffer from chronic insomnia (and have done for well over a decade), and partially because I am simply exhausted. I’ve had breakfast, indulged in some domestic drudgery, been shopping, had some lunch and had a short twitter with a friend on the demon drugs that are called dopamine agonists. Continue reading
14 Pieces of Parkinson’s
In celebration/commemoration of the fourteenth anniversary of my diagnosis with Parkinson’s Disease, I re-published 14 articles of mine, one a day for two weeks. Here’s the countdown!
1. Ten Years a Slave – I wrote this on the tenth anniversary of my diagnosis, and it includes extracts from Slender Threads. As such it’s an interesting snapshot of strange times.
2. The Longest Wait – A piece I wrote for The Independent in May 2008, a few months after my diagnosis. It’s all about the future, of course, it’s just that the future is now. I wrote no. 2 of my 14 pieces of Parkinson’s for the Independent in May 2008, a couple of months after diagnosis. It’s about the future as it appeared at the time. Also here. Continue reading
The Story of Gladiators, Ready?
Just a little expansion on the story behind Gladiators, Ready? the first release from the upcoming Dancing with Architects.
All proceeds to Spotlight YOPD, a charity dedicated to helping those diagnosed with Parkinson’s at an unseasonably young age. You can stream it on …
SPOTIFY — APPLE MUSIC — TIDAL
In short, the tune is a 1995 recording resurrected and re-produced with the help of some fabulous guest artists, namely Bryan McClellan on drums, Mel Gabbitas on bass, Phil Hilborne – Guitar solos 2 & 4 (2.37-2.52: 4.13-4.28), Steve Forward – Guitar solo 3 (4.00-4.13), and Bora Uslusoy – Guitar solo 5 (5.30-5.45). All other guitars by Pete in 1995. Original recording 1995 by Pete Langman and Gregory Humair, re-recording and re-production in 2021 by Bora Uslusoy.
What Parkinson’s has taught me about C-19
Twelve year ago, I was diagnosed with Parkinson’s Disease. I was forty years old. It was something of a shock to the system. Over the years I have become increasingly aware of what such a diagnosis does to you. Not what the disease itself does (though I have also become increasingly, and uncomfortably, aware of this. That’s what the words progressive, degenerative and incurable mean), but what the act of diagnosis actually means to the diagnosed. I don’t for a minute think that what I am about to describe is unique to Parkinson’s, though I suspect it may, in many ways, be something that is largely confined to chronic ailments such as Parkinson’s. Continue reading
writing with parkinson’s
This morning I responded to a twweet from a fellow paarky about aainnvolutary amovemnet. I wrote ‘it’s a buggea. Goodaaa job I’m naoat a writaer.oah.’ asa a response. He tweeted eme bacaaaak saaying it’as like ahhaaving aa suattera in tetx. I repalied thata i sometims want to publish aaa fiaart darafat atao gie pewople ann iadaea of whata it’s like.
Soa I have,. 63 words nd a4aaminutea.
Parakinson’a i aaahaarad.
Yet another Covid Chronicle
The grebe paddles serenely, ripples shining in its wake, crest puffed out as if to remind me that my own hair is not only thinner than once it was but currently arranged like a middle-aged, pepper-and-salt Tintin. As I focus, it barks at me. It’s not a warning. It sounds more like it’s calling its mate: ‘Hey, fluff up and get over here, some guy’s taking my picture.’ Continue reading
Who Breathes, Wins
C-19. It sounds like a far-right paramilitary group dedicated to expelling foreigners and purifying the race. The kind of people for whom the leap from deporting illegal aliens to euthanazing the disabled is more of a Sunday afternoon stroll. But Covid-19 is already forcing members of the medical profession in Italy to choose who lives and who dies – or, at least, who is given the greater chance of living. Continue reading
An Apple a Day
Since the beginning of the coronavirus outbreak, and especially since it began to make its mark as the shelves of nation after nation were cleared of toilet paper, there has been one constant: the internet has been a greater spread of dangerous misinformation than any other source. One wonders how the virus managed to achieve such mastery of social media in such a short time. But it doesn’t have to be this way. The internet, or more specifically the global network of gps satellites and mobile phones, can do something extremely positive. Continue reading
Dancing with Architects – the return of the sybarite
And so, with an almost delicate flash of stick across toms, a track I recorded 24 years ago roars back into life. Since it was recorded in 1995, as part of the set that made up the album Dancing with Architects, it’s been loitering with intent, waiting for its turn to re-occupy its rightful place in the world, scaring the bejesus out of unwary guitarists. While the original album was recorded in a week, this version, complete with real drums and an extra guitar solo, took rather longer to prepare. Continue reading