Twelve year ago, I was diagnosed with Parkinson’s Disease. I was forty years old. It was something of a shock to the system. Over the years I have become increasingly aware of what such a diagnosis does to you. Not what the disease itself does (though I have also become increasingly, and uncomfortably, aware of this. That’s what the words progressive, degenerative and incurable mean), but what the act of diagnosis actually means to the diagnosed. I don’t for a minute think that what I am about to describe is unique to Parkinson’s, though I suspect it may, in many ways, be something that is largely confined to chronic ailments such as Parkinson’s. Continue reading
This morning I responded to a twweet from a fellow paarky about aainnvolutary amovemnet. I wrote ‘it’s a buggea. Goodaaa job I’m naoat a writaer.oah.’ asa a response. He tweeted eme bacaaaak saaying it’as like ahhaaving aa suattera in tetx. I repalied thata i sometims want to publish aaa fiaart darafat atao gie pewople ann iadaea of whata it’s like.
Soa I have,. 63 words nd a4aaminutea.
Parakinson’a i aaahaarad.
The grebe paddles serenely, ripples shining in its wake, crest puffed out as if to remind me that my own hair is not only thinner than once it was but currently arranged like a middle-aged, pepper-and-salt Tintin. As I focus, it barks at me. It’s not a warning. It sounds more like it’s calling its mate: ‘Hey, fluff up and get over here, some guy’s taking my picture.’ Continue reading
Five years ago, on January 30th, my life changed. It changed because a consultant uttered the words ‘you have Parkinson’s’.
In the months that followed, my marriage, my career, and my sense of self took an almighty battering. Continue reading
People are good sometimes. It happened like this. I’m waiting in the sorting office for the man to admit he can’t find this item, even though he hunteth hi and lo, and aa chap comes in, picks up his parcel, rips off the packaging, and reveals a good-looking tome wrapped in cellophane. he smiles, I enquire as to its type, he explains it’s a picture book, I ask what he does, he replies that he’s a graphic designer, and I, without so much as a second thought, ask him if he’ll do me a cover for my book, for free. He looks mildly surprised, asks what it’s about, then simply says yes.
We just had a couple of pints, and what a splendid chap.
Oh, and here’s the kindle cover:
and the book cover: